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EU-Africa PerMed 7th webinar: “Empowering Patients as Partners in Clinical Research”.
October 23, 2023
EU-Africa PerMed project (Building Links Between Europe and Africa in Personalised Medicine)
The EU-Africa PerMed project organise its 7th webinar entitled “Empowering Patients as Partners in Clinical Research: Patient Engagement in Personalised Medicine Research in Europe and Africa Landscape”. It will take place next Monday, October 23th 2023, at 4 30 EAT.
This webinar aims to highlight the importance of patient engagement in Personalised Medicine (PM) Research and Implementation, providing insights into effective strategies for involving patients as partners in the research process.
It will bring together a panel of experts, including researchers, funding organizations and patient advocates from Europe and Africa side, to share their experiences and perspectives on patient engagement.
Speakers:
- Eltjo Heddema. Patient Advocate on behalf of Inspire2Live Organization. Professionally his experience is in project, program and change management (finance, software development). Inspire2Live connects cancer patients, doctors and scientists to find the optimal approach to serve the best interests of the patient.
- Sonia Abdelhak. Member of PerMediNA project, is head of the Research Laboratory on Biomedical Genomics and Oncogenetics and member of the Communication, Science and Society Support Unit at Institut Pasteur de Tunis. Dr Abdelhak has been involved in R&I training activities in Africa and capacity building in human molecular genetics and genomics.
- Helena Harnik. She will present the “From Testing to Targeted Treatments (FT3) program”. It is a global multi-stakeholder collaborative program that aims to improve patient outcomes by improving access to precision medicine for all patients who could benefit. The presentation will aim to highlight how the patient engagement community has been engaged as co-leads in this project, along with other stakeholder groups, to address barriers to precision medicine in practice, with two case studies from Hungary and Spain.
- Franklin Sunday Mtei. Patient Advocate at Inspire2Live organization. Currently working as a senior radiation therapist at Ocean Road Cancer Institute in Dar es Salaam, Tanzania. He is also the founder of the Tanzanian Cancer Society and he is also a Board member Tanzania Non Communicable Diseases Association TANCDA.